Sickle Cell Disease is a major but often overlooked public health challenge in Western Kenya, particularly in Siaya County, where prevalence rates are among the highest in the country and globally. The disease poses a serious threat to children, leading to severe pain, anemia, organ damage, and a high risk of early mortality if not properly diagnosed and managed.

Many families remain unaware of their child’s condition until life-threatening complications arise. Limited access to newborn screening, diagnostic tools, medications, and community awareness continues to hinder early intervention and care.

For over 24 years, our team members have been at the forefront of addressing SCD in the region. Our Siaya Community Sickle Cell Anemia Outreach Program, founded and led by Dr. DJ Perkins over 20 years ago, has now partnered with Winam Pediatric and Maternal Health Solutions to work across clinical, educational, and advocacy platforms to improve the lives of those affected.

What We Do

• Community-Based Screening
  We offer free sickle cell screening to help families identify the condition early — especially during infancy and childhood when interventions are most effective.
  
  
• Access to Lifesaving Care
  We connect diagnosed individuals with care services, including medications such as folic acid, antibiotics, antimalarials, hydroxyurea, and pain management support, while promoting adherence and follow-up care through local health facilities.
  
  
• Family & Caregiver Support
  We establish and facilitate support groups where families can share experiences, access psychosocial resources, and receive guidance on nutrition, hydration, and infection prevention.
  
  
• Training & Capacity Building
  We equip local healthcare workers and Community Health Volunteers (CHVs) with the tools to identify symptoms, support affected families, and raise awareness within their communities.
  
  
• Education & Stigma Reduction
  Through schools, churches, and outreach events, we deliver tailored health education to reduce myths, stigma, and misinformation surrounding SCD.

Why It Matters

Without early diagnosis and long-term care, many children with SCD face preventable suffering or early death. Our work ensures that no child is left behind because of where they were born or what resources their family has. By combining scientific knowledge with community leadership, we are improving both life expectancy and quality of life for families across Siaya.

“Without screening and access to care, SCD is a silent killer. Our work is changing that.”
— Dr. DJ Perkins, Founder and Chair

Call to Action